Jeans for Genes features real-life kids living with genetic diseases. Each of them face every day with resilience and strength. With your help, we can make a difference for kids like them.

Mollyjane's Story

Mollyjane's Story

Mollyjane’s parents were told she wouldn’t survive a few days, so they celebrate every new day as a major miracle.

Charlie's Story

Charlie's Story

Living with cystic fibrosis means Charlie takes 20 pills, does physiotherapy and uses a nebuliser every day of his life.

 
Briella's Story

Briella's Story

Briella spent 10 months in hospital to straighten her spine but came out with nothing but a smile and positive attitude.

Ben's Story

Ben's Story

Ben’s cancer was so aggressive that he spent 96 nights in hospital, sometimes on chemotherapy for 22 hours at a time.

 
 
Max's Story

Max's Story

Max’s genetic condition is so rare, his parents don’t even know what his lifespan will be. They just hope that research will change that.

Lachlan's Story

Lachlan's Story

Any genetic disease is a challenge, but Lachlan lives with multiple conditions that impact every aspect of his life.

 
Charlize's Story

Charlize's Story

Beautiful Charlize was diagnosed with Propionic Acidemia and has already undergone two liver transplants.

Chloe's Story

Chloe's Story

Chloe and her twin sister Zara were just two years old when she was diagnosed with a stage five Wilms Tumour and started chemotherapy.

 
 
Cooper's Story

Cooper's Story

Like so many first time mums, Rhiannon had nothing but gut instinct to tell her that something was wrong when Cooper was born.

Ethan's Story

Ethan's Story

When little Ethan was born, his family had no idea what challenges their little boy would face. 

 
Henry's Story

Henry's Story

Henry and his sister Rosalie both live with a very rare disorder known as LCHAD.

Iluka's Story

Iluka's Story

At four weeks old Iluka was diagnosed with a genetic disease which can affect her brain, heart, lungs, connective tissue, and bowel. 

 
 
Keenan's Story

Keenan's Story

From the minute Keenan was born, his mum Pixie knew there was something terribly wrong with her beautiful boy.

Kush's Story

Kush's Story

Kush was born with a a unique mutation on his FoxG1 gene which has not been reported previously in any database or literature. 

 
Linke's Story

Linke's Story

Linke’s family were told she wouldn’t make her second birthday, now that she is five years old every day is a blessing.

Maddy's Story

Maddy's Story

Maddy was born with Diastrophic Dysplasia and requires continual monitoring throughout her childhood. 

 
 
Naomi's Story

Naomi's Story

Four-year-old Naomi is a beautiful little girl diagnosed with SATB2 Associated Syndrome (SAS), a rare genetic syndrome.

Max's Story

Max's Story

At just 2 years old Max was diagnosed with Autism Spectrum Disorder, Global Developmental Delay, and ADHD.

 
Quinn's Story

Quinn's Story

Sasha realised something wasn’t right when her little boy, Quinn, couldn’t turn his head at the sound of his name.

Ruby's Story

Ruby's Story

Her two-first born children were a blessing to new mum, Bec, however, almost instantly she noticed something was wrong with Ruby.

 
 
Ryan's Story

Ryan's Story

Two-year-old Ryan may have an extremely serious genetic disease, but his parents will never let him feel like a victim.

Simon's Story

Simon's Story

Five year old Simon starts every day with a strict routine of physiotherapy and up to 25 pills to treat his Cystic Fibrosis.